|
|
|
|
Home / Health / Conditions and Diseases / Neurological Disorders / Demyelinating Diseases / Leukodystrophy
|
| Categories |
|
|
|
|
|
|
|
|
Web Sites
|
- Aicardi-Goutieres Syndrome - News, descriptions, contacts, and other information concerning this leukodystrophy.
www.aicardi-goutieres.com
- Alexander Disease - Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
www.ninds.nih.gov/health_and_medical/disorders/alexand_doc.htm
- Call Again Soon - Directed at making life better for people affected by Leukodystrophy and those who know and love them.
www.joejohnson.net
- Devoted to Brianna - Medical experiences and terminology helpful for parents to understand and cope with genetic disorders. One little girl's story, concerning Canavan Leukodystrophy offers help and hope to many.
hometown.aol.com/ydb739094/brianna.html
- Family Village / Library / Leukodystrophy - Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease, Metachromatic Leukodystrophy, and Refsum's Disease.
www.familyvillage.wisc.edu/lib_leukodystrophy.html
- Leukodystrophy - CHORUS document on the different types of Leukodystrophy. A little technical.
chorus.rad.mcw.edu/doc/00231.html
- Leukodystrophy - A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
www.ninds.nih.gov/health_and_medical/disorders/leukodys_doc.htm
- Leukodystrophy Hub - A brief definition followed by links to research articles, overviews and case reports.
www.projectlinks.org/leukodystrophy
- MCW HealthLink - Alexander Disease - Information sheet from the Medical College of Wisconsin.
healthlink.mcw.edu/article/921383447.html
- Metachromatic Leukodystrophy - A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
www.ninds.nih.gov/health_and_medical/disorders/meta_leu_doc.htm
- The Stennis Foundation - Raising public awareness regarding Metachromatic Leukodystrophy, and raising funds for MLD research.
www.stennisfoundation.org
- Undiagnosed Leukodystrophy - Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological condition thought to be genetic.
members.tripod.com/phillipslauren
- United Leukodystrophy Foundation - Nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in their health.
www.ulf.org
|
|
|
|
|