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Home / Health / Conditions and Diseases / Genetic Disorders / Personal Pages
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- Health/ Conditions and Diseases/ Genetic Disorders/ Cystic Fibrosis/ Personal_Pages@ (30)
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- Health/ Conditions and Diseases/ Genetic Disorders/ Down Syndrome/ Personal_Pages@ (13)
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Web Sites
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- Alpha1 Antitrypsine Deficiency - One man's perspective and journey with A1AD and a list of links and other resources from the internet.
home.att.net/~a1ad/intro.htm
- Ashly's Skeletal Dysplasia - A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.
www.angelfire.com/or2/ashlysworldofwonders/about.html
- Daniels Neurofibromatosis page - A child living with neurofibromatosis and optic glioma with links.
www.ilynn6.freeserve.co.uk
- GotGod?com - A family and memorial website dedicated to their son, Nathan Philip Batman, who passed away as a result of Trisomy 13, or Patau's Syndrome.
gotgod.com
- Joy's Page - Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly.
www.lebaronfamily.com
- Maddy's Page - The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.
members.aol.com/kymwig
- Robert Kenneth Picklesimer - Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.
www.picklesimers.com/robert_kenneth.html
- Taryn's World: About Switches - Personal page for kids and parents about genetic disorders, especially mannosidosis.
www.tarynsworld.org/taryn/switches.htm
- Treacher Collins Syndrome - A Personal View - UK based website, containing information about the disorder, with helpful links and discussion forum.
www.treachercollins.co.uk
- XXXXY Syndrome - Information on this rare chromosomal abnormality.
www.xxxxysyndrome.com
- Zara Fox - Read and learn about a little girl that has Coffin-Sirris Syndrome.
www.zarafox.co.uk
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