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Home / Health / Conditions and Diseases / Neurological Disorders / Peripheral Nervous System / Neurofibromatosis
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- Health/ Conditions and Diseases/ Neurological Disorders/ Neoplasms/ Acoustic_Neuroma@ (15)
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Web Sites
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- British Columbia Neurofibromatosis Foundation - BCNF is a membership driven organization, which empowers individuals with NF and their families to reach their full potential by providing support, education and research funding.
www.bcnf.bc.ca
- Daniel`s NF page - The story of one child dealing with neurofibromatosis, hydrocephalus, optic glioma, blindness and learning difficulties. Links to other sites.
www.ilynn6.freeserve.co.uk
- Diagnostic and Management Criteria for Neurofibromatosis 1 and 2 - Revised - Revised criteria published in JAMA in 1997, by the National Neurofibromatosis Foundation Clinical Care Advisory Board.
www.ama-assn.org/sci-pubs/journals/archive/jama/vol_278/no_1/rv71001.htm
- Genomelink - A description of Neurofibromatosis, followed by links to research articles, treatment methods, clinical trials and non-profit organizations.
www.genomelink.org/neurofibromatosis
- March of Dimes - A fact sheet about the Neurofibromatoses.
www.modimes.org/HealthLibrary/335_605.htm
- Neurofibromatosis - Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
www.ninds.nih.gov/health_and_medical/disorders/neurofibro.htm
- Neurofibromatosis Association of Australia Inc. - Support group for people with neurofibromatosis. Has a medical and scientific advisory board and close affiliation with similar NF groups overseas.
www.nfaa.org.au
- Neurofibromatosis Clinic at M. D. Anderson Cancer Center - Information about neurofibromatosis and details of Center which provides diagnosis, treatment, patient education, and relevant research.
www.mdanderson.org/departments/neurofibrom
- Neurofibromatosis Clinics Association Volunteer Opportunities - Details of many ways to volunteer to help the Neurofibromatosis Clinics Association.
trfn.clpgh.org/nfca/volunteer.html
- Neurofibromatosis Clinics Association, Inc. - A non-profit organization for people with NF and their families.
trfn.clpgh.org/nfca
- Neurofibromatosis Network - Links to European neurofibromatosis laygroups.
www.nf-network.huma.org
- Neurofibromatosis Resources - Links, with reviews, to information about neurofibromatosis 1 (Von Recklinghausen's disease. Personal pages.
neurosurgery.mgh.harvard.edu/NFR
- Neurofibromatosis Resources - Photographs - Photos of cafe au lait spots and external neurofibroma tumors.
neurosurgery.mgh.harvard.edu/NFR/photos.htm
- Neurofibromatosis(Von Recklinghausen's disease) - A review of the most important aspects on physical examination, classification and treatment, for medical students.
www.medstudents.com.br/neuro/neuro7.htm
- Neurofibromatosis, Inc. - Support and information for those with Neurofibromatosis.
www.nfinc.org
- The National Neurofibromatosis Foundation (NNFF) - Comprehensive information sponsored by the National Neurofibromatosis Foundation for people with NF, and links to other sites.
www.nf.org
- The Neurofibromatosis Association UK - Information about the UK Association, including family support, membership details and local group contacts.
www.users.zetnet.co.uk/neurofibromatosis
- The NF2Crew Website - On-line discussion group for people with neurofibromatosis 2.
www.webcrossings.com/nf2crew
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