- Arlene Brandeis' Intuitive Art - An expression of the loss of family members to genetic anomalies including Ehlers-Danlos Syndrome, Acute Intermittent Porphyria, and Hypolipoproteinemia. Information provided about each.
www.arlenebrandeis.com
- Canadian Ehlers-Danlos Association - Working together to provide assistance, support and resources for people living with this rare genetic disorder.
www.ceda.ca
- Damaged - A Journal - The personal diary of a young woman learning to live with Ehlers Danlos Syndrome.
www.pixeldiva.co.uk/journal
- EDS Today - The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
www.edstoday.org
- Ehlers Danlos Foundation of New Zealand - Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
www.edfnz.org.nz
- Ehlers-Danlos Hope - Personal plea for help from a sufferer in Syria.
ehler.8m.com
- Ehlers-Danlos National Foundation - Provides support and information to those affected by Ehlers-Danlos syndrome and their families.
www.ednf.org
- Ehlers-Danlos National Foundation - Michiana Branch - Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.
michianaednf.org
- Ehlers-Danlos Syndrome Information - A brief description of EDS and how it is inherited. Edited by Frederick Matsen III MD Chairman, Department of Orthopaedics, University of Washington, Seattle, USA.
www.orthop.washington.edu/arthritis/types/ehlersdanlos/01
- Ehlers-Danlos Syndrome Support Group - This site offers extensive information for patients and doctors, plus links.
www.ehlers-danlos.org
- New York / New Jersey Ehlers-Danlos and Hypermobility - Details about this support, message and discussion center. Includes a search feature and posting a message.
disc.server.com/Indices/163893.html
- NORD - Ehlers-Danlos Syndrome - EDS disease information from the National Organization for Rare Disorders.
www.stepstn.com/cgi-win/nord.exe?proc=Redirect&type=rdb_sum&id=240.htm
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