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Home / Health / Conditions and Diseases / Endocrine Disorders / Adrenal / Congenital Adrenal Hyperplasia
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Web Sites
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- Archives of Pediatrics and Adolescent Medicine - Guidelines for dealing with individuals with ambiguous genitalia. Milton Diamond, Ph.D. and H. Keith Sigmundson, M.D.
www.afn.org/~sfcommed/apam.htm
- Bodies Like Ours - Support and information for people born with atypical genitals
www.bodieslikeours.org
- CAH Our Voices and Our Stories - Contains information on the psychological and emotional aspects of Congenital Adrenal Hyperplasia. A message board is also included in this site.
www.cahourstories.net
- CAH Support Forum - A resource about Congenital Adrenal Hyperplasia, for and by parents of CAH children. Includes messaging forums.
www.cahsupportforum.com
- Cah Support Group - Information on this genetic disease and what the support group aims to do and how to contact us.
www.cah.org.uk
- CARES Foundation, Inc. (Congenital Adrenal hyperplasia Research, Education and Support) - CARES Foundation is dedicated to supporting individuals and families affected by all forms of congenital adrenal hyperplasia.
caresfoundation.org
- Congenital Adrenal Hyperplasia Support Group - Information about the support group and the service it provides.
www.rch.unimelb.edu.au/CAH
- Congenital Adrenal Hyperplasia.org - Information and message boards for parents of children born with CAH
www.congenitaladrenalhyperplasia.org
- Controversy Over Genital Surguries Heats up at Annual Pediatrics Conference - Noted sex researcher Milton Diamond, in an invited lecture last Saturday, told the American Academy of Pediatrics that the time has come to instate a general moratorium on genital surgeries and sex reassignments performed on intersex children without their consent
www.isna.org/pr/pr10-21-98.html
- Evaluation of Patients with Congenital Adrenal Hyperplasia - Retrospective study of Turkish patients with symptoms including cliteromegaly (girls) and premature virilization (boys). Concludes that due to high incidence in this ethnic group, neonatal screening is important to assure adequate treatment.
ams.cu.edu.tr/September2000Vol9No3/guler.html
- Gender Pac - National News - Newsweek & New York Times cover ontersex genital mutlation (IGM)
www.gpac.org/news/html/iyf083.html
- Intersex Individuals Dispute Wisdom of Surgery on Infants - Human rights for intersexuals. Intersex individuals dispute wisdom of surgery on infants
www.luckymojo.com/tkintersex.html
- Intersex Society of North America - Intersex support and activism dedicated to the elimination of unnecessary intersex genital surgery
www.isna.org
- Late Onset Congenital Adrenal hyperplasia - Information and links about this genetic disease.
www.geocities.com/HotSprings/3532
- Paper by Morgan Holmes: Long Version - This paper discusses the surgical and medical management of intersexed children in terms of a relationship of violence in which the intersexed infants/children are completely disenfranchised, it highlights the similarities between traditional practises of female genital mutilation and genital 'reconstructive surgery', fleshes out tensions around complicity in the genital mutilation of intersexed infants and children, and views homophobia as a motivating factor in the management of intersexed bodies.
www.usc.edu/isd/archives/queerfrontiers/queer/papers/holmes.long.html
- Physicians Weekly - Article about performing cosmetic surgery and the pros and cons of it.
www.physiciansweekly.com/archive/99/08_16_99/pc.html
- Prenatal Treatment for Virilising (21-hydroxylase deficient) - Description of prenatal treatment using dexamethasone to stop virilization of females.
bspe.shef.ac.uk/NN/CAHPREG.html
- Syndromes of Abnormal Sex Differentiation a Guide for Patients And Their Families - Pamphelet from John's Hopkins Hospital
www.med.jhu.edu/pedendo/intersex
- The Surgical Management of Congenital Adrenal Hyperplasia - Describes the cause and treatment of CAH with emphasis on surgical intervention.
www.cornellurology.com/uro/cornell/pediatrics/genitoplasty.shtml
- The Tyranny of the Esthetic - This article by Martha Coventry discusses the emtional and psychological trauma produced by genital surgery.
mosaic.echonyc.com/~onissues/su98coventry.html
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