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Home / Health / Conditions and Diseases / Nutrition and Metabolism Disorders / Porphyrias
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Web Sites
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- Acute Intermittent Porphyria Forum - Information and links about Porph. Includes registration form for an email list.
members.tripod.com/~theaipforum
- Canadian Porphyria Foundation - Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
www.cpf-inc.ca
- Diagnosing the Porphyrias - An article by Thomas G. DeLoughery, Associate Professor of Medicine.
www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml
- EPP - Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
members.tripod.com/~Alzuko/epp.htm
- HealthCentral - Porphyria - General overview of this rare disease.
www.healthcentral.com/mhc/top/001208.cfm
- King George II and Porphyria - Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
www.mhhe.com/biosci/ap/seeleyap/cardio/reading20.mhtml
- Me and AIP - Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
hometown.aol.com/heyjude957/aip.html
- Porphgroup - An e-mail group at Yahoo dealing with the metabolic disease porphyria.
groups.yahoo.com/group/porphgroup
- Porphyria - A look at the different types of these disease and some of their characteristics.
www.thedoctorsdoctor.com/diseases/porphyria.htm
- Porphyria - From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
groups.yahoo.com/group/porphyria
- Porphyria Hub - Links to overviews, full text articles, diagnosis and treatment and research projects.
www.knowdeep.org/porphyria
- Porphyria Page - A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
www.uq.edu.au/porphyria
- Porphyria: The Unknown Disease - Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
members.tripod.com/~PorphBook
- Porphyria: The Woman Who Has The Vampire Disease - Review by the FindArticles.com on this book on porphyria written by Lenore B. Weinstein.
www.findarticles.com/cf_0/m0FSP/3_21/53578846/p1/article.jhtml
- Porphyrias - A brief look at the two major types, the symptoms and an example is given.
medic.bgu.ac.il/mirrors/netbiochem/hi6.htm
- Porphyrias: Diagnosis and Treatment - Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
www.medstudents.com.br/metdis/metdis3.htm
- Prophyria in Charlottesville - An e-mail sent to Professor Huskey from a person working on a rescue squad.
www.people.virginia.edu/~rjh9u/porphyriaemail.html
- Suite 101 - Offers links and articles about Porphyria.
www.suite101.com/welcome.cfm/porphyria
- The American Porphyria Foundation - Non-profit organization advancing awareness, research, and treatment of Porphyria. Fact sheets and links to related resources.
www.enterprise.net/apf
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