Ara Parseghian Medical Research Foundation - About this foundation whose goal is to find a cure for the devastating Niemann-Pick Type C disease. www.parseghian.org/apmrfweb
National Niemann-Pick Disease Foundation - Provides in depth education and support for patients and families. Also information about the foundation itself. www.nnpdf.org
Niemann-Pick Disease - Information sheet on this disease including what it is, treatment, prognosis and research being done. www.ninds.nih.gov/health_and_medical/disorders/niemann.doc.htm