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Home / Health / Conditions and Diseases / Neurological Disorders / Epilepsy / Organizations
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Web Sites
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- American Epilepsy Society - Promotes research and education for professionals dedicated to the prevention, treatment and cure of epilepsy.
www.aesnet.org
- BC Epilepsy Society - A non-profit organization dedicated to improving the lives of people living with epilepsy. Provides also books, videos pamphlets, magazines and other teaching materials.
BCEPILEPSY.COM
- Brainstorm Bear - Brainstorm Bear, a traveling epilepsy awareness bear visits families around the world. His travels are intended to localize and personalize the story of children and adults with Epilepsy. You can request a visit at this site.
pages.ivillage.com/brainstormbear
- British Epilepsy Association - Services of the BEA, information, news, professional section, children's section, and keyword search.
epilepsy.org.uk
- Canadian Epilepsy Alliance - Features national epilepsy news and priorities, profiles of everyday Canadians living with seizures, and links to grassroots service organizations for people with epilepsy and their families from coast-to-coast.
www.epilepsymatters.com/English/index.html
- Charlie Foundation - The Foundation was established in 1994 in order to raise awareness about the ketogenic diet as a treatment for childhood epilepsy. The Foundation's role is to facilitate investigation, educate professionals, and inform families about the current status of the ketogenic diet.
www.charliefoundation.org
- Chrissy & Friends - The organization offers children with epilepsy a variety of activities and provides support groups for parents of children with epilepsy and for young adults.
www.chrissyandfriends.org
- Dutch Epilepsy Care Foundation - In-patient clinics are located in Heemstede, Cruquius, and Zwolle.
www.sein.nl/defaultEng.asp
- Edmonton Epilepsy Association - Provides basic information about epilepsy to individuals with epilepsy, their families, and the public.
www.ecn.ab.ca/epilepsy/home.htm
- Epilepsy Action Scotland - Provides general information about epilepsy. Campaigns for more epilepsy services across Scotland and offers addresses of branches and support.
www.epilepsyscotland.org.uk
- Epilepsy and Youth Project - An IBE project with the objective of giving a voice to young people around the world. Offers a chat room, contacts and information.
www.eyie.org
- Epilepsy Canada - National non-profit organization featuring news, information and resources on epilepsy.
www.epilepsy.ca/eng/mainSet.html
- Epilepsy Foundation of the Chesapeake Region - EFCR has worked to improve the quality of life for individuals with seizure disorders through hands-on, individualized services. People of all ages look to EFCR for guidance and assistance in leading fuller, more independent lives. EFCR serves the Maryland, Washington D.C, and Northern Virginia communities.
www.abilitiesnetwork.org/efcr.htm
- Epilepsy Foundation of Victoria - Provides extensive information about epilepsy and offers several discussion groups.
www.epinet.org.au
- Epilepsy Museum Kork - First museum for epilepsy and its history: Causes, diagnosis, therapy, epilepsy in the literature, epilepsy and arts, famous people who suffered from this disease.
www.epilepsiemuseum.de/english
- Epilepsy New Zealand - Works to promote the welfare and interests of people, and their family, with epilepsy and to increase public awareness. Provides general information, current news and discussion forums.
www.epilepsy.org.nz
- EPILEPSY NEWFOUNDLAND AND LABRADOR - Informs about the association and provides basic information about epilepsy.
www.nfld.net/epilepsy
- Epilepsy NSW - Provide advice and guidance, education, research and support services in association with allied medical and community agencies.
www.auscharity.org/epilnsw.htm
- Epilepsy Ontario - Information about epilepsy and especially about drug therapy.
www.epilepsyontario.org
- Epilepsy Prince Edward Island - Provides information about the organization.
www.isn.net/epilepsy
- Epilepsy Queensland - Gives information about the organization, offers a discussion forum and a chat session.
www.eqi.org.au
- Epilepsy Research Foundation - Promotes, supports and raises money to fund basic and clinical research into the basic causes of epilepsy. It aims to improve the lives of those who suffer from epilepsy and thus the lives of their families, friends and colleagues.
www.erf.org.uk
- Epilepsy Toronto - Provides up-to-date, comprehensive information and interactive resources for living well with this disease.
www.epilepsytoronto.org
- European Concerted Action and Research in Epilepsy - Provides information to neurologists, media and governments. Services include publications and recordings of scientific sessions at congresses.
www.eucare.be
- European Epilepsy Academy (EUREPA) - Being part of the European structure of the International League Against Epilepsy (ILAE), EUREPA initiates and co-ordinates concerted research on matters relating to epilepsy throughout Europe.
www.eurepa.de
- F.A.B.L.E - For a Better life with Epilepsy - Organization whose mission is to promote and fund Vagus Nerve Stimulation Therapy for those with epilepsy uncontrolled by medication alone. Offers help and support to potential patients and their families, linking families in similar situations through a patient support network.
www.fable.org.uk
- International Bureau for Epilepsy - Interested in the non-medical aspects, addressing such social problems as education, employment, insurance, driving license restrictions and public awareness. Includes activities, publications and links.
www.ibe-epilepsy.org
- International League Against Epilepsy (ILAE) - International organization founded in 1909 to advance and disseminate knowledge about epilepsy, to promote research, education and training and to improve services and care for patients.
www.ilae-epilepsy.org
- Kuekids Australia - Provides information, links and support for parents of children with uncontrolled epilepsy. Includes ketogenic diet and food intolerance.
home.iprimus.com.au/kuekids/home
- Manitoba Epilepsy Association Inc. - Provides peer counseling and information services to people with epilepsy and the parents of children with epilepsy.
www.mbepilepsy.org
- Parents Against Childhood Epilepsy - Offers a history and mission statement, information and events, research, a message board, links, institutes and doctors and information about the disease.
www.paceusa.org
- South African National League against Epilepsy - SANEL is a non-government organization dedicated to working with people with epilepsy and their families, to enable them to lead meaningful and enriching lives. The site offers comprehensive information about epilepsy and an Online Counselor.
www.epilepsy.org.za
- THE EPILEPSY ASSOCIATION OF CALGARY - The Epilepsy Association of Calgary is a charitable, social Service agency established to address community, individual, and family needs related to epilepsy.
www.epilepsycalgary.com
- The Epilepsy Institute - Information about the organization as well a resource for patients, their families and the community.
www.epilepsyinstitute.org
- The Leon Bender Foundation - Information about this organization which helps bring awareness and research for epilepsy. Also information about the disease, contact details and its supporters.
www.lbf.org
- The National Society for Epilepsy (NSE) - British organization aiming to improve medical treatment, to provide information and to raise awareness about epilepsy among people affected by this disease and among the general public.
www.epilepsynse.org.uk/pages/index/home
- Victoria Epilepsy and Parkinson's Centre - Provides information about the organization and basic information about epilepsies.
www.vepc.bc.ca
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