- Cystinosis : Patient UK - Information for those living in the United Kingdom concerning this disease. Organizations, help and advice.
www.patient.co.uk/illness/c/cystinosis.htm
- Cystinosis Central - Information about this disorder, conferences, data for physicians, updates and links.
medicine.ucsd.edu/cystinosis/INDEX.htm
- Cystinosis Foundation - Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
www.cystinosisfoundation.org
- Cystinosis Research Network - Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
www.cystinosis.org
- Readers Digest Health - Cystinosis, its alternate names, a general discussion and resources.
www.rd.com/common/nav/index.jhtml?articleId=8612575
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