- Barth Syndrome Family Network - Offers details about the disease, message board, research sites, events and private chats. Numerous links to other resources.
shelbowen.freeyellow.com
- Barth Syndrome Foundation - Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
www.barthsyndrome.org
- Clinical Mass Spectrometry Laboratory - An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management.
www.med.jhu.edu/CMSL/Barth_Summary.html
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