- NORD - Shwachman Syndrome - Offers a general discussion, the synonyms and further resources.
www.stepstn.com/cgi-win/nord.exe?proc=GetDocument&rectype=0&recnum=371
- Pediatric Database - A definition of Shwachman-Diamond syndrome, the epidemiology, pathogenesis, clinical features, investigations and management.
www.icondata.com/health/pedbase/files/SHWACHMA.HTM
- Shwachman Syndrome - A mothers story to diagnose this disorder before a team of doctors could.
www.chariot.net.au/~dna/angelica.html
- Shwachman-Diamond America - Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
shwachmandiamondamerica.org
- Shwachman-Diamond Syndrome International - Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
www.shwachman-diamond.org
- The CaF Directory - A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.
www.cafamily.org.uk/Direct/s24.html
|
