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Home / Health / Conditions and Diseases / Genetic Disorders / Fragile X Syndrome
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Web Sites
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- Carolina Fragile X Project - A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
www.fpg.unc.edu/~fx
- Conquer Fragile X, Inc. - Creating a virtual research center in Israel to find a cure.
www.conquerfragilex.org
- Fact Sheets for Health Professionals: Fragile X Syndrome - From the Victorian Government, Australia.
hnb.dhs.vic.gov.au/commcare/yafs_yf.nsf/bced7550634b825a4a25676c00482e1b/1d5baac3ccee72744a256744000645a3?OpenDocument
- Familyvillage - Links to places to talk about Fragile X.
www.familyvillage.wisc.edu/lib_frgx.htm
- Fragile X Association of Australia - Information on this disease, medical aspects, education, references, contacts and what's new in Australia
www.ozemail.com.au/~fragilex
- Fragile X Association of Southern California - Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
www.fraxsocal.org
- Fragile X Fact's Page - Describing Fragile X Syndrome.
www.ich.ucl.ac.uk/cmgs/frax98.htm
- Fragile X Syndrome - Single page on recognition of the condition in young children.
home.coqui.net/myrna/fragile.htm
- Fragile X Syndrome - Diagnostic and Carrier Testing - A Policy Statement from the American College of Medical Genetics.
www.faseb.org/genetics/acmg/pol-16.htm
- FRAXA Research Foundation Home Page - Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
www.fraxa.org
- GenomeLink - An introduction of Fragile X Syndrome, followed by links to articles, clinical trials and support groups.
www.genomelink.org/fragile
- Online Support Group - Support group for Family's who are dealing with Fragile X Syndrome.
groups.yahoo.com/group/fragilex
- Queensland Fragile X Association - About QFXA, news, events, links and contacts. Also information of fragile X syndrome.
cwpp.slq.qld.gov.au/qldfragilex
- The National Fragile X Foundation - The National Fragile X Foundation informes and educates about the Fragile X Syndrome.
nfxf.org
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