|
|
|
|
Home / Health / Conditions and Diseases / Neurological Disorders / Neurodegenerative Diseases / Tuberous Sclerosis
|
|
|
|
Web Sites
|
- Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program - Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
www.cincinnatichildrens.org/Programs_Services/229/index.asp
- Kolten's Tuberous Sclerosis Page - Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
www.Kolten.homestead.com/Kolten.html
- Marian's Life with Tuberous Sclerosis - Marian's story. Information about the disease, pictures, contacts, medicine, links.
www.reiske-net.de/marian
- National Library of Medicine - A list of synonyms, a summary and major features of tuberous sclerosis.
www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?term=tuberous+sclerosis&field=name
- NORD - Tuberous Sclerosis - Offers alternative names, a general discussion and further resources.
www.stepstn.com/cgi-win/nord.exe?proc=GetDocument&rectype=0&recnum=35
- Pediatric Database - A definition of tuberous sclerosis, followed by the epidemiology, pathogenesis, clinical features, investigations and management.
www.icondata.com/health/pedbase/files/TUBEROUS.HTM
- Pediatric Oncall- Tuberous Sclerosis - Offers commonly asked questions about this disease.
www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp
- TSCTalk - Mailing list and discussion boards for patients and professionals.
www.tsctalk.com
- Tuberous Sclerosis - A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
www.ninds.nih.gov/health_and_medical/disorders/tuberous_sclerosis.htm
- Tuberous Sclerosis - Lisa's Site - An incurable genetic condition that causes tumors to grow in various places in the body.
www.title14.com/ts
- Tuberous Sclerosis Association - "Supporting sufferers, promoting awareness, and seeking the causes and best possible management of Tuberous Sclerosis." Full of resources and information on Tuberous Sclerosis, plus contact details.
www.tuberous-sclerosis.org
- Tuberous Sclerosis Fact Sheet - Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
www.ninds.nih.gov/health_and_medical/pubs/tuberous_sclerosis.htm
- Tuberous Sclerosis Hub - A brief definition of, followed by links to overviews, research articles, case reports and images.
www.healthubs.com/tuberous
|
|
|
|
|