|
|
|
|
Home / Health / Conditions and Diseases / Cardiovascular Disorders / Heart Disease / Congenital
|
| Categories |
|
|
|
|
- Health/ Conditions and Diseases/ Cardiovascular Disorders/ Heart Disease/ Support_Groups@ (45)
|
|
|
|
Web Sites
|
- About.com - Information about congenital heart defects, and February 14th being recognized as a day for hearts.
heartdisease.about.com/blchd.htm
- Acyanotic Congenital Heart Defects - Describes PDA, coarctation of the aorta, ASD, VSD, AVSD, AS, PS, tetralogy of fallot, TGA, TAPVR, truncus arteriosus, tricuspid atresia, and HLHS.
www.mamashealth.com/Acyanotic.asp
- AMA: Statement for Health Care Professionals - Guidelines for evaluation and management of common congenital cardiac problems in infants, children, and adolescents. From the committee on congenital cardiac defects of the council on cardiovascular disease in the young.
www.americanheart.org/presenter.jhtml?identifier=1210
- American Heart Association - The AHA website is a simple introduction to the concept of congenital heart disease, with layperson explanations of the various conditions, tests for diagnosis and treatment options.
www.americanheart.org/presenter.jhtml?identifier=1477
- CHD Awareness Day - The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.
www.tchin.org/aware.htm
- CHD Support Graphics - A collection of banners, buttons, dividers and even e-cards to spread awareness about birth defects of the heart.
heartdisease.about.com/chdgraphics.htm
- Congenital Heart Disease Treatments - Short and simple explanations of the different procedures used in treating heart birth defects.
www.americanheart.org/presenter.jhtml?identifier=4580
- Congenital Heart Diseases Their Study and Treatment - A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999)
www.redtail.net/owc
- CongenitalHeartDefects.com - Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals.
www.congenitalheartdefects.com
- Coping with Congenital Heart Disease in Your Baby - Article with some useful information, published by The American Academy of Family Physicians.
www.aafp.org/afp/990401ap/990401d.html
- Cyanotic Congenital Birth Defects - Information on a wide variety of congenital heart defects, from Mama's Health.
www.mamashealth.com/cyanotic.asp
- Dextrocardia with Situs Inversus - Good information on the extremely rare condition of Dextrocardia with Situs Inversus. Causes, treatment, pictures and a support forum are available to ask others affected by this disorder.
www.laughs.com.au/sid
- Feeding Your Infant With Congenital Heart Disease - American Heart Association gives details on baby's growth, how to feed your baby, feeding tips, breastfeeding, formula feeding, tube feeding, starting solid foods, asking for help, heart medication and feeding and looking ahead.
www.americanheart.org/presenter.jhtml?identifier=4885
- Fetal Heart Surgery - The Issues - The fascinating concept of operating on heart disease while a baby is still unborn may soon become reality. Read about the issues, the controversies, the potential.
heartdisease.about.com/library/weekly/aa022298.htm
- Fontan Operation - Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle.
www.dencats.org/fontan/fontan.htm
- General Practice Notebook - Congenital heart disease - Clinically-oriented information.
www.gpnotebook.co.uk/MedwebPage.cfm?ID=1221591043
- Grown Up Congenital Heart Patients Association (GUCH) - Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.
www.guch.demon.co.uk
- Guidelines for Long-term Management of Patients With Kawasaki Disease - Report from the Committee on Rheumatic Fever, Endocarditis, and Kawasaki Disease, Council on Cardiovascular Disease in the Young, American Heart Association.
www.americanheart.org/presenter.jhtml?identifier=1181
- Heart Defects Society of Windsor and Essex County - Organization for persons affected by heart defects and their families
www.hdswindsor.org
- Heart Defects: Truncus Arteriosus Type 1 - Information, diagram, symptoms and medical treatment, from the Children's Heart Institute.
www.childrenheartinstitute.org/educate/defects/truncus1.htm
- Heart Disease Online - A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.
www.dencats.org/heart/disease.htm
- Heart Disease Online: HLHS - Read about diagnosis, treatment options and surgery for hypoplastic left heart syndrome, discussed in simple language.
www.dencats.org/heart/congenital/hlhs1.htm
- Hearts Of Hope - Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia.
www.heartsofhope.iinet.net.au
- HLHS Information - Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.
www.hlhsinfo.homestead.com
- International Society for Adult Congenital Cardiac Disease - The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members.
www.isaccd.org
- Kawasaki Family Network - Provides support and information about this disease to patients and their families, tracks current research in this area and has links to other helpful sites on KD.
ourworld.compuserve.com/homepages/kawasaki
- Mamas Health - Contains a lot of information about acyanotic congenital defects.
www.mamashealth.com/acyanotic.asp
- March of Dimes - Looks at congenital heart defects, explaining what it means, how the heart works, how they affect a child, causes, treatments, prenatal tests available, prevention and research.
www.modimes.org/HealthLibrary/334_601.htm
- MedicineNet - Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments.
www.about-heartdisease.com
- Miami Children's Hospital - Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.
www.pediatricheartsurgery.com
- Minimal Invasive Congenital Heart Surgery - An article about treating birth defects of the heart using this techniques.
heartdisease.about.com/library/weekly/aa011198.htm
- Oregon Health Sciences University - Congenital heart defects site with citations to other articles on the specialty.
www.ohsu.edu/cliniweb/C14/C14.240.400.html
- Our Little Braveheart - Jake was born with Tetralogy of Fallot. This is his story along with some pictures.
pages.ivillage.com/stephandjake/braveheart
- Palliative Operations - The early staged operations for patients with this congenital heart defect, Tetralogy of Fallot, that lead up to the final correction surgery.
heartdisease.about.com/library/weekly/aa112397.htm
- Persistent Pulmonary Hypertension of the Newborn - A definition along with look at the diagnosis, treatment and the prognosis, from the University of Washington Academic Medical Center.
neonatal.peds.washington.edu/NICU-WEB/pphn.stm
- Resources from California State University - Very extensive list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.
www.csun.edu/~hcmth011/heart
- The Children's Heart Society - Information about this non-profit, volunteer based support group, dedicated to helping families affected by Congenital Heart Disease/Defects.
www.childrensheart.org
- The Children's Hearts Fund - Information about the organization dedicated to finding a cure for the deadly orphan disease protein losing enteropathy (PLE). Also covers events, FAQs and links to other resources.
www.colinscure.com
- Ventricular Septal Defect - VSD is one of the commonest congenital heart defects, where there's a hole in the wall between the two lower chambers of the heart. An article from About.com with Richard N. Fogoros.
heartdisease.about.com/library/weekly/aa020898.htm
- Adult Congenital Heart Association - Information, resources and support for adults with congenital heart disease.
www.achaheart.org
- Congenital Heart Disease Information and Resources - Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.
www.tchin.org
|
|
|
|
|