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Home / Health / Conditions and Diseases / Genetic Disorders / Cystic Fibrosis
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Web Sites
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- Boomer Esiason Foundation - Fighting Cystic Fibrosis - A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.
www.esiason.org
- Canadian Cystic Fibrosis Foundation - Support and resources. Located in Toronto, Ontario.
www.cysticfibrosis.ca
- CCFF Sudbury Chapter - Website of the Canadian Cystic Fibrosis Foundation Sudbury Chapter. Provides information on local events and information about Cystic Fibrosis.
www.cyberbeach.net/~cf
- CF Advantage - The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz
wsrv.clas.virginia.edu/~rjh9u/cysfib.html
- Cyber Campus - The Cyber Campus is a computer course aiming to empower and educate people with Cystic Fibrosis. From the Cystic Fibrosis Association of Ireland (CFAI).
www.internet-ireland.ie/horizon
- Cystic Fibrosis - Maintained by Dr. James Hu
www.med.monash.edu.au/paediatrics/cf.html
- Cystic Fibrosis Health FactSheet - Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html
- Cystic Fibrosis I.Q. Test - Test what you know about cystic fibrosis.
www.aarc.org/patient_education/iq_tests/cf/cf_form.html
- Cystic Fibrosis in the Ukraine -
hoshi.cic.sfu.ca/abstracts/posters/Poster80.txt
- Cystic Fibrosis Links - Cystic Fibrosis Links and Information
www.goodgulf.com/cystic.html
- Cystic Fibrosis Management - Article detailing therapeutic options for co-management.
www.thorne.com/altmedrev/fulltext/cystic.html
- Cystic Fibrosis Research Center - Provides support, information and answers about this disease. CF news, events, links and chat rooms.
www.65roses.com
- Cystic Fibrosis Research Inc. - News about CF research. Site also has a newsletter available.
www.cfri.org
- Cystic Fibrosis Resource Center - Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
www.healingwell.com/cysticfibrosis
- Cystic Fibrosis Victoria Inc - Information about Cystic Fibrosis and the organisation, online chat room and message board.
www.cfv.org.au
- Cystic Fibrosis Western Australia - Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
www.cysticfibrosiswa.org
- Cystic Fibrosis.com - Tools, resources, support groups, online resources, news and treatment information.
www.cysticfibrosis.com
- Future Force - Irish publication including articles on home IVs, nutrition, exercise and first person accounts of living, dying and transplantation.
www.internet-ireland.ie/horizon/mag/welcome.html
- General Practice Notebook - Cystic fibrosis - Clinically-oriented information.
www.gpnotebook.co.uk/simplepage.cfm?ID=919601157
- Gentiva's Cystic Fibrosis Information Center - Gentiva Health Services Cystic Fibrosis Information Center is designed to help you understand cystic fibrosis (CF) and to provide valuable information regarding treatment programs, services and literature.
www.gentiva.com/consumer/cystic_fibrosis
- I.C.F.M.A. - A not-for-profit organization for increasing cystic fibrosis awareness.
www.icfma.org
- IACFA- International Association of Cystic Fibrosis Adults - International association with the purpose of improving the quality of life of all adults with cystic fibrosis, by identifying common problems, enhancing the exchange of information and raising the awareness of the medical profession.
www.iacfa.org
- It Can't Be CF - For those going through the Cystic Fibrosis (CF) diagnosis process. Symptoms, misconceptions, diagnosis stories, (one child with failure to thrive, another misdiagnosed with asthma), general information, links and resources are included.
home.att.net/~cfdiagnosis
- Jewish Genetic Diseases - Cystic Fibrosis - Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
www.mazornet.com/genetics/cystic_fibrosis.asp
- Living with Cystic Fibrosis - Site by a person with CF. Includes advice on hospitalizations, relationships, social life and growing up with CF. Also includes a discussion board.
frontpage.velocity.net/yanc
- Lungs for Life Foundation - Provides financial assistance to cystic fibrosis and lung transplant patients.
Lungsforlife.org
- Mamas Health - Find out what Cystic Fibrosis is, the symptoms and the causes.
www.mamashealth.com/cfibrosis.asp
- Manual for Cystic Fibrosis Patients and their Families - From the European Thematic Network for Cystic Fibrosis. In depth information in PDF.
www.med.kuleuven.ac.be/cme/cf/Informationdocuments.htm
- MyCysticFibrosis - Log on for Living With Cystic Fibrosis - Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
www.mycysticfibrosis.com
- NHLBI, Facts About Cystic Fibrosis -
www.nhlbi.nih.gov/nhlbi/lung/other/gp/cystfib.htm
- PulmonologyChannel - Information on cystic fibrosis.
www.pulmonologychannel.com/cf
- Reaching Out Foundation - Provides information on the programs provided by this foundation, a personal story of a person with CF who had a double lung transplant, general information on CF, and how you can donate.
www.reachingoutfoundation.org
- Richard Shannon Lung Transplant Fund - Richard Shannon has Cystic Fibrosis. He is on the list for a lung transplant. A fund raiser is ongoing to pay for expenses beyond what insurance covers. Prayers and contributions are helpful.
www.shannonlungs.org/index.html
- Salvay Healthcare Ltd., UK - This site has been produced by Solvay Healthcare Ltd., and is designed to be a useful source of information for cystic fibrosis patients, parents, doctors and other carers.
www.cysticfibrosis.co.uk/cystic.htm
- Sharktank.org - Dedicated research for a cure for cystic fibrosis.
www.sharktank.org
- The Breathing Room - Guidance about the art of living with cystic fibrosis.
www.thebreathingroom.org
- The Ortho-McNeil CF Care Website - Provides people with cystic fibrosis, family members, and the CF community with quick and easy access to education and information.
www.cfcare.com
- The Victoria Foundation - Helps young adults with Cystic Fibrosis and assist parents in caring for their son or daughter at home, with the support of the Southampton CF adult team.
members.lycos.co.uk/victoriafoundation
- Victoria Chapter, Canadian Cystic Fibrosis Foundation - The Victoria Chapter, one of 51 Chapters of the Canadian Cystic Fibrosis Foundation, works to provide a brighter future for every person born with cystic fibrosis. It assists in the quest to find a cure or control for the disease.
victoria.tc.ca/Health/VicCCFF
- Yahoo! Health - Cystic Fibrosis -
health.yahoo.com/health/dc/000107/0.html
- Cystic Fibrosis Foundation - Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy.
www.cff.org
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