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Home / Health / Conditions and Diseases / Blood Disorders / Anemia / Fanconi
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Web Sites
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- Adam Day - Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a donation to the Fanconi Anemia Research Fund.
www.adam.interactiveinc.com
- Alex and Matt Pearl - Personal stories of two children fighting Fanconi Anemia.
www.alexandmatt.com
- B Positive, Inc. - A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.
www.bpositiveinc.com
- Diamond Blackfan Anemia - Information and support for patients and families with this type of anemia in the United Kingdom; Details on research, treatments and charitable aims of the group.
www.diamondblackfan.org.uk
- Diamond Blackfan Anemia - Also known as hypoplastic anemia and pure red cell aplasia. Information and support for patients and families; DBA registry; donations to further research; and fund-raising.
www.diamondblackfan.com
- Diamond-Blackfan Syndrome - A definition, epidemiology, clinical features, complications, investigations and management.
www.icondata.com/health/pedbase/files/DIAMOND-.HTM
- Family Village: Fanconi Anemia - Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
www.familyvillage.wisc.edu/lib_fanc.htm
- Fanconi Anaemia - A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area.
www.fanconi-anaemia.co.uk
- Fanconi Anaemia - A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
www.cancerindex.org/ccw/fanconi.htm
- Fanconi Anemia Fact Sheet - Jewish Genetic Diseases - Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
www.mazornet.com/genetics/fanconi_anemia.htm
- Fanconi Anemia Fact Sheet - University of Pittsburgh - Brochure about its diagnosis and treatment published by the University of Pittsburgh Department of Human Genetics, including links to support and diagnosis resources.
www.pitt.edu/~edugene/Fanconi.html
- Fanconi Anemia Research Fund - To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
www.fanconi.org
- Fanconi Anemia Web - An informational site for this disorder.
members.tripod.com/fanconianemiaweb
- Fanconi Anemia: the Frohnmayer Family's Experience - The personal story of David and Lynn Frohnmayer whose three daughters were born with Fanconi anemia, an inherited, usually fatal illness.
darkwing.uoregon.edu/~lfrohn
- Fanconi Canada - Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
www.fanconicanada.org
- Hope for Henry - This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
www.hsg.org
- International Fanconi Anemia Registry - A study being done on patients with fanconi anemia to obtain clinical and genetic information. Genetic counseling and dietary instruction will be provided.
clinfo.rockefeller.edu/fanconi
- International Fanconi Anemia Registry - Provides contact information, and an overview of what the study aims to achieve.
clinfo.rockefeller.edu/fanconi/ptrecrt.html
- Yahoo! Groups: blackfan - Open mailing list for Diamond Black Fan Anemia sufferers.
groups.yahoo.com/group/blackfan
- Yahoo! Groups: fanconi - Discussion list for fanconi sufferers.
groups.yahoo.com/group/fanconi
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