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Home / Health / Conditions and Diseases / Neurological Disorders / Muscle Diseases / Muscular Dystrophies
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- Health/ Conditions and Diseases/ Neurological Disorders/ Muscle Diseases/ Myotonic_Dystrophy@ (3)
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Web Sites
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- A Guide for Parents - This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
www.mda.org.au/publication/guide/mdaguide.html
- Becker Muscular Dystrophy Information Exchange - This web site serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
www.beckermusculardystrophy.org
- Bruce's Muscular Dystrophy Links - Offers links and information on Duchanne MD. Also details about scolioses, general anesthesia and respiratory care.
bwillinks.homestead.com/bru1.html
- Distro/files - A personal muscular dystrophy site in Italian with information for Italians with muscular dystrophy
www.distrofiles.it
- DMD Forum - An International forum providing support and resources for families and individuals facing the challenge of Duchenne Muscular Dystrophy.
www.dmdforum.org
- DMD Information - Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
www.angelfire.com/band/teja/infofram.htm
- DMD Options - Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
www.dmdoptions.com
- Dr. John R. Bach - The DMD/SMA/ALS Doc - This site provides information about Non-Invasive Ventilation (NIV) and pulmonary care. Utilizing NIV as an alternative to a tracheostomy decreases hospitalization and increases quality of life.
www.doctorbach.com
- Duchenne Muscular Dystrophy Support - Providing information and offering support about this disease with some personal information and photos.
members.tripod.com/susan.morris
- Duchennes - Provides links to medical and non-medical organizations and people with Duchennes problems.
www.ducennes.addr.com
- FSH Friends - This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy.
www.infowest.com/personal/a/alan/FSH/Friends2
- General Practice Notebook - Duchenne muscular dystrophy - Clinically-oriented information.
www.gpnotebook.co.uk/MedwebPage.cfm?ID=-885719035
- HealtHub - A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
www.healthubs.com/dystrophy
- Living For Today: A Guide for Parents of Boys with Duchenne Muscular Dystrophy - Living For Today is a growing reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
www.livingfortoday.org
- MD Respite - Offers a definition of respite care and information for all individuals and families affected by all forms of muscular dystrophy. Includes links to agencies and mailing lists.
www.mdrespite.org
- MDA Ride For Life - Pennsylvania Ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, May 5, 2001.
www.mdarideforlife.org
- Muscular Dystrophy - A short information sheet on MD compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
www.ninds.nih.gov/health_and_medical/disorders/md.htm
- Muscular Dystrophy Community - Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers.
community.healingwell.com/commun_v3/scripts/topics.pl?NodeID=137336&ClientID=15808
- National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
www.urmc.rochester.edu/nihregistry
- Ask NOAH About: Muscular Dystrophy - The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health).
www.noah-health.org/english/illness/neuro/musdys.html
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