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Home / Health / Conditions and Diseases / Neurological Disorders / Muscle Diseases / Muscular Dystrophies / Organizations
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Web Sites
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- Cell Therapy Research Foundation - Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials.
www.celltherapy.com
- Facioscapulohumeral Muscular Dystrophy Society - The FSH Society address issues and needs related to FacioScapuloHumeral Muscular Dystrophy (FSHD).
www.fshsociety.org
- Logan Paige Foundation for Myotonic Dystrophy - Dedicated to educating potential parents about Myotonic Dystrophy and genetic testing. Information about fundraising, both for research and to assist people who cannot afford testing, news, stories, and about Logan Paige.
www.loganpaige.org
- Muscular Dystrophy Association of Australia - Extensive information on the range of disorders, research information and many links to onsite publications. Also provides an international support network with a chat service dedicated for use by the worldwide MD community.
www.mda.org.au
- Muscular Dystrophy Association of Canada - National voluntary agency committed to eliminating neuromuscular disorders.
www.mdac.ca
- Muscular Dystrophy Association of USA - Voluntary health agency providing information and supporting research into neuromuscular diseases, including Muscular Dystrophy.
www.mdausa.org
- Muscular Dystrophy Ireland - Voluntary organization in Ireland which provides support for people with muscular dystrophy and their families.
www.mdi.ie
- Parent Project for Muscular Dystrophy Research, Inc. - Committed to expediting a treatment and cure for Duchenne and Becker Muscular Dystrophy by funding research and education.
www.parentdmd.org
- Parent Project UK - Parent Project UK is a charity set up by parents and supporters of boys with Duchenne and Becker Muscular Dystrophy that promotes research to find a cure or viable treatments.
www.ppuk.org
- Society for Muscular Dystrophy Information International - Features organization background, disease information, newsletters, membership information, resources, and contact details.
www.auracom.com/~smdi
- The European Alliance of Muscular Dystrophy Associations (EAMDA} - Provides advice about neuromuscular conditions, and assistance and information to families, carers and professionals.
www.sonnet.co.uk/eamda
- The Multiple Sclerosis Society (UK) - Extensive information about MS, living with MS, advice and support, helpline, research, publications, events, volunteering and membership information. Directory of local branches.
www.mssociety.org.uk
- The Muscular Dystrophy Campaign (UK) - A UK-based charity which funds medical research and support services for people with neuromuscular conditions. Site contains detailed information about duchenne, becker and many other conditions. Sections on education, care, physiotherapy, research and ways to help raise funds.
www.muscular-dystrophy.org
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