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Home / Health / Support Groups / Conditions and Diseases / Facial Differences
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Web Sites
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- AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
www.Aboutfaceinternational.org
- Acne Support Group - Information and support on acne, including top ten tips, beauty tips and problems.
www.stopspots.org
- Beneath the Surface - Created for all individuals of facial difference who are looking for support, resources, and a forum to share their stories and read about others.
beneaththesurfaceweb.com
- Birthmark Support Group - From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
www.birthmarksupportgroup.org.uk
- Cancer Of The Eye Linkline (CELL) - UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
pages.zoom.co.uk/cell/index.htm
- Changing Faces - UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
www.changingfaces.co.uk
- Children's Craniofacial Association - Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
www.ccakids.com
- Crouzon Support Network - A network designed to offer support to individuals and families dealing with Crouzon's Syndrome and other craniofacial anomalies.
www.crouzon.org
- Disfigurement Guidance Centre - Support and information for people with facial and other disfigurements via post or telephone. Details of International Skin Laser Directory and booklets. Based in Scotland.
www.dgc.org.uk
- Face the Future - Information and resources for people living with a facial disfigurement in the North East of England.
dspace.dial.pipex.com/face-the-future
- FACES: The National Craniofacial Association - Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
www.faces-cranio.org
- John Hopkins Center for Craniofacial Development and Disorders - Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.
www.hopkinsmedicine.org/craniofacial
- Let's Face It UK - Friendship and support for people who have a facial difference.
www.letsfaceit.force9.co.uk
- Let's Face It USA - A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
www.faceit.org
- Moebius Syndrome - Moebius Syndrome support, information and resource site.
www.moebius1.org
- Sincere Meditations - Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
www.davidroche.com/lamott.htm
- Support Works Online - Resources to find or form support groups related to facial difference. Information on medical research.
www.supportworks.org/cat806.htm
- The Craniofacial Foundation of Arizona - Provides information and support for people with head and face disfigurement. Happy Faces Family Network is a non-medical organization of volunteers, aiming to raise public awareness of craniofacial problems, promoting community acceptance and understanding.
www.azcranio.com/support.html
- The Craniofacial Society of Great Britain and Ireland - Information about the society, which is a multidisciplinary forum for specialists.
www.cfsgb.org.uk
- The DRM WebWatcher: Facial Differences - A Disability Resources monthly guide to online resources about craniofacial differences.
www.disabilityresources.org/FACE.html
- The Journey to Sara's Smile - Canadian surgeon Dr Ronald Zuker performed nerve graft surgery to remedy Sara's left-sided facial paralysis.
sarasmiles.com
- The New Face Foundation - A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
www.newfacefoundation.com
- The Personal Side of Craniofacial Differences - Personal accounts of living with craniofacial conditions, and related webrings.
members.tripod.com/~Craniofacial/index.html
- University of Florida Craniofacial Center - Serves patients with craniofacial malformations and their families, conducting research, and educating students and professionals in the discipline of craniofacial science and related healthcare.
www.ufcleft.com/mission/index.html
- XP Support Group - UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
xpsupportgroup.org.uk
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