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Home / Health / Support Groups / Conditions and Diseases / Facial Differences / Cleft Lip and Palate
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Web Sites
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- American Cleft Palate/Craniofacial Association (ACPA)/Cleft Palate Foundation - Information and support from this newly combined organization.
www.cleftline.org
- Born to be Cleft - Personal story of what it was like having been born with a cleft lip and cleft palate.
www.borntobecleft.com
- Childrens Hospital Los Angeles, division of plastic Surgery - Meet the children's cleft lip & palate reconstructive team at Childrens Hospital of Los Angeles.
www.hopeforkids.com/body_cleft_lip[1].html
- Cleft Lip and Cleft Palate - Check out our kids' article about cleft lip and cleft palate to learn about what causes them, the kinds of things doctors do to fix them, and what life is like for kids with cleft lip or cleft palate.
www.kidshealth.org/kid/health_problems/birth_defect/cleft_lip_palate.html
- Cleft Advocate - Cleft Advocate is a one-stop resource for cleft patients and their families, providing education and understanding for dealing with the issues cleft patients face. Includes insurance information and the Cleft Advocate Family-To-Family Connection.
www.cleftadvocate.com
- Cleft Club - Support for Cleft Lip and Cleft Palate - Cleft lip and palate support group for people born with cleft lip/palate, parents of cleft children, and other relatives and friends. Includes message boards, mailing lists, pictures, live chat, and more.
www.cleftclub.com
- Cleft Lip & Palate Association - Information on services and advice offered by this UK association
www.clapa.com
- Cleft Lip and Palate - Concise factsheet on causes, symptoms and treatment of cleft lip and palate.
hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/cleft_lip.html
- Cleft Lip and Palate Association of Ireland - An Irish voluntary group providing support and information for parents of children with cleft lip and palate and those directly affected.
www.cleft.ie
- Cleft Lip and Palate Support - Help and support to those whose lives have been touched by a cleft lip and/or palate and who live in the Dallas/Ft. Worth, Texas metroplex area.
hometown.aol.com/dfwcleft
- Cleft Lip Repair - A complete cleft repair procedure and illustrations, as authored and performed by Dr. John M. Lore.
www.mane-event.com/cleft1.htm
- Cleft Notes - Site dedicated to families with cleft born children. Pictures of bilateral cleft and submucous palate repair progression along with medical and personal information.
www.geocities.com/cleftnotes
- Cleft Palate Unit (Guys & St Thomas Hospital, London, England) - Outlines work undertaken at the unit, advice for parents and relevant links.
www.umds.ac.uk/cleft
- Cleft-Chat and Smile - An on-line support group for parents of children born with cleft lip and/or cleft palate.
www.topica.com/lists/cleftchat
- CleftPALS QLD INC. - Australian support group that provides information and help for families with a cleft child.
www.powerup.com.au/~cleftpal
- CleftSupport.com - Support group for parents of children born with cleft lip and palate.
www.cleftsupport.com
- Family-To-Family Connection - Interactive group answers questions and concerns regarding cleft lip/palate care and surgery.
mchenet.ichp.edu/scripts/lyris.pl?enter=cleftadvocate&text_mode=&lang=english
- Feeding of the Newborn with Cleft Lip and Palate - Adresses feeding difficulties and solutions for cleft-affected newborns.
www.ohsu.edu/cdrc/cfd/feeding.shtml
- Final Operations (Cleft Lip/Palate) -- John B. Mulliken - John B. Mulliken, M.D. discusses final operations related to teeth, lip scars and nose, for teenagers with cleft lip/palate.
www.samizdat.com/pp7.html
- Left Clip Club for Older Children and Teenagers - A place for older children and teenagers affected by cleft lip and/or cleft palate to communicate and share ideas. Organised by the Cleft Lip and Palate Association (UK).
groups.yahoo.com/group/leftclip
- Living With Cleft Lip and Palate - One woman's journey to adulthood with cleft lip and palate. Contains support and information links as well as a forum for discussion with others who are faced with clefts.
members.tripod.com/deeanddall2
- Maryland Society for Cleft Lip and Palate Children - For children with cleft lip/cleft palate and their families and friends.
www.msclpc.org
- NU - Cleft Lip and Palate Institute - Information about Chicago's Northwestern University team of medical, dental, and speech professionals, helping with the various issues of cleft lip, cleft palate, and other orofacial anomalies.
www.craniofacialinstitute.com
- Operation Rainbow - Registered Canadian charity oversees volunteer medical teams providing free reconstructive surgery to children in under-served countries with cleft lip, palate, and burn scars
www.operationrainbowcanada.com
- Prescription Parents - Articles and links for parents of children born with cleft lip/cleft palate.
www.samizdat.com/pp1.html
- Renaissance Plastic Surgery- Cleft Lip Surgery, Cleft Lip Reconstruction, Cleft Lip Surgeon, Indiana - Dr. Fata of Renaissance Plastic Surgery specializes in cleft lip surgery and is dedicated to providing the most advanced plastic surgery techniques available for cleft lip surgery in a warm but professional environment.
www.cleft-lip-surgery.com
- Smiles - Cleft lip and palate support group providing help on craniofacial issues and an overview of cleft palae management
www.cleft.org
- SPEECH AND CLEFT LIP & CLEFT PALATE - Find out more about the speech therapy in a child with cleft lip and cleft palate.
www.pediatriconcall.com/forpatients/SpeechandHearing/speech_cleft_lippat.asp
- Surgical Techniques - Several techniques explained, including the Furlow Palatoplasty (otherwise known as Z-plasty) and Pharyngeal Flap (p-flap). Includes extensive library of photographs and diagrams.
www.teachsurgery.org/public/interplastcd/interplast/surgical/index.html
- The Craniofacial Surgery Book - Understanding the state-of-the-art surgical techniques to repair cleft lip and palate.
www.erlanger.org/craniofacial/book.html
- The Great Ormond Street Branch of the Cleft Lip And Palate Association - This site provides information on the committee members, fundraising events and achievements of the Great Ormond Street Branch of the CLAPA.
www.clapagos.org.uk
- Transforming Faces Worldwide - A charity supporting cleft lip and palate management around the world.
www.transformingfaces.org
- Velopharyngeal Insufficiency - When speech therapy just isn't enough, many times pharyngeal flap surgery is recommended. This article addresses the indications and remedies for velopharyngeal insufficiency in cleft-affected patients.
www.emedicine.com/ent/topic596.htm
- Wide Smiles - Cleft Lip and Cleft Palate Resource.
www.widesmiles.org
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